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I moved to Boston in 2015 to start my PhD and I’ve always worked clinically at MGH during the process, but I was very interested in this notion of measuring function and frailty. And a lot of them never actually improve their ADLs once they’re sent to SNF. Many of them aren’t enrolled in hospice before they die.
In the United States, about 177,360 children have conditions that warrant palliative care on an annual basis, according to the 2015 report “Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life,” published by the National Academies Press.
God, it must have been like 2015, 2016. One of the criteria was needing help with three or more activities of daily living, things like bathing, getting in or out of bed, toileting, walking across the room, or needing help with two or more AdL’s, plus the presence of wandering or like constant need for supervision. And I agree.
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