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It’s common for kids with cerebral palsy, cystic fibrosis, seizure disorders, and even those on ventilators to be in public and private schools. Tube feedings, PICC line care, daily catheterizations, and tracheostomy care are just a few of the specialized clinical procedures a school nurse may perform.
The concept of death literacy comes from a Lancet Commission report in February 2022. It’s going into an intensive care unit and getting feeding tubes and ventilators and all this stuff that isn’t going to change anything. Hospice News spoke with Connelly about the importance of death literacy and how to pursue it.
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