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My patients are exhausted from the day—not just the physical toll of rehabilitation, but the emotional toll of rediscovery, grief, and learning how to exist in ways they didn’t know they could. I realize what a privilege it is to be present for my patients and to share in their trials and triumphs. We end the day with dinner.
However, these activities of daily living ( known as ADLs ) may become more challenging even if the patient is able to move around on their own. funeral arrangements, grief counseling, etc.). It can be a challenge to understand the needs of a loved one with ALS if they can no longer communicate with you in an optimal manner.
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