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Alice has stated that she is unsure about a feeding tube but is certain she does not want a ventilator or other assistive breathing device. Do your socialworkers know how to access the lending closet for specialized equipment? Her grandso n was able to receive support from the socialworker and the child life specialist.
Eventually, all the muscles that a person can control are affected, forcing the person to use a ventilator and/or feeding tube. From daily living activities such as shopping, cooking, and cleaning, to more demanding activities such as bathing or feeding, caring for an ALS patient can take a toll.
This refers to choosing a very small group of family and friends who have been following infection-control measures with whom we can interact for short periods of time in an outdoor or well-ventilated environment. Home health care is covered by Medicare and most insurances. It is your right to choose the agency you prefer.
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