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It’s a story about caregiving. That caregiving piece, like I want to see something actionable. How can this be, somebody who’s so deeply invested and embedded in hospice and palliative care, caregiver for her mother? It’s at this point where she’s talking about highly aggressive life-prolongingtreatment.
This can be a covered benefit to relieve caregiver burnout, or to provide continuous care if the main caregiver cannot do so for a brief period of time. The focus of Hospice Care is not curative, meaning no traditional lifeprolongingtreatment such as chemo or surgery are continued.
This type of request is often made by those wishing to avoid life-prolongingtreatments such as ventilation or artificial nutrition when there is no hope for recovery. In some cases, the advance directive will indicate that palliative care should be used without limitation until death occurs.
Caroline: As a very young caregiver myself for my parents who had advanced dementia, as a teenager, this was just a really powerful song that just hit home as a caregiver. Many residents dying with untreated symptoms, often after multiple high hospitalizations, lifeprolongingtreatments, and very little specialty palliative care.
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