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To find a diagnosis, practitioners are responsible for recognizing the concerns of the parents or caretakers and analyzing the available evidence in addition to a workup that includes a neurological exam, EEG, and MRI. Receiving my son’s diagnosis was the hardest thing I have gone through and came with a huge emotional journey.
Since hospice care is usually provided in the home, a loved one may still be involved as the primary caregiver, with guidance and support provided by professional medical staff on the hospice care team. In addition, home care aides may also be present to assist with personalcare services such as bathing and grooming.
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