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Caring for Someone with ALS

Traditions Health

Eventually, all the muscles that a person can control are affected, forcing the person to use a ventilator and/or feeding tube. From daily living activities such as shopping, cooking, and cleaning, to more demanding activities such as bathing or feeding, caring for an ALS patient can take a toll.

Feeding 52
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Surrogate Decision Making: Bernie Lo and Laurie Dornbrand

GeriPal

In 1988, Cruzan’s parents requested that her feeding tube be removed, arguing that she would not want to continue in this state. On the one hand, this was unfortunate, as it meant Nancy Cruzan could not be disconnected from the feeding tube immediately. In 1990 the Supreme Court ruled…for the state of Missouri. Alex: Bernie.

Document 281
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Miscommunication in Medicine: A podcast with Shunichi Nakagawa, Abby Rosenberg and Don Sullivan

GeriPal

Because, if anybody hasn’t seen it, you’ve got a great Twitter feed that gives tons of pearls on palliative care and a lot on communication. Speaking of pearls, should we move to Shunichi’s Twitter feed? Alex: Shunichi, your Twitter feed is like haiku. What motivated you to dive into this? Don’t use that.

Article 361
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POLST Evidence and Update: Kelly Vranas, Abby Dotson, Karl Steinberg, and Scott Halpern

GeriPal

And whether tube feeding should be on there, that’s never an emergency decision. It would have a CPR section and then it would have a healthcare proxy section. Because POLST doesn’t, I believe, correct me if I’m wrong, you can’t assign a durable power of attorney for healthcare or healthcare proxy.

Document 309
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Aging and the ICU: Podcast with Lauren Ferrante and Julien Cobert

GeriPal

And Lauren Ferrante has found in a study published in JAMA Internal Medicine that trajectories of disability in the year prior to ICU admission were highly predictive of disability post-ICU, on the same order of magnitude as mechanical ventilation. He, his Twitter feed though is brilliant. Eric: Yeah. Alex: Yeah. Lauren: Shock.

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Caregiving Best Practices: Get Healthcare, Financial, and Legal Affairs in Order

Hope Hospice

Do you and your loved ones have an advance healthcare directive as well as the other documents necessary for managing legal and financial issues (e.g., This couple did not have advance healthcare directives nor were documents in place that would enable the wife to handle her husband’s independent financial accounts and property.

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Caregiver Mistakes: Not Having Healthcare, Financial, and Legal Affairs in Order

Hope Hospice

Do you and your loved ones have an advance healthcare directive as well as the other documents necessary for managing legal and financial issues (e.g., This couple did not have advance healthcare directives nor were documents in place that would enable the wife to handle her husband’s independent financial accounts and property.