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Caring for Someone with ALS

Traditions Health

Eventually, all the muscles that a person can control are affected, forcing the person to use a ventilator and/or feeding tube. When to Seek Help Caring for someone with ALS often presents many challenges for the patient’s primary caregiver.

Feeding 52
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Comics and Humor in Palliative Care: A Podcast with Nathan Gray

GeriPal

Nathan is a Palliative Care doctor and an assistant professor of Medicine at Johns Hopkins. He uses comics and other artwork to share his experiences in palliative care and educate others about topics like empathy and communication skills. We’ve had two podcast already on poems in both aging and in palliative care.

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Miscommunication in Medicine: A podcast with Shunichi Nakagawa, Abby Rosenberg and Don Sullivan

GeriPal

Don: Thanks for having me, Alex: And we’re delighted to welcome back Abby Rosenberg, who’s Chief of Pediatric Palliative Care at Dana-Farber Cancer Institute and Director of Palliative Care at Boston Children’s Hospital and Associate Professor of Pediatrics at Harvard Medical School in Boston.

Article 361
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Surrogate Decision Making: Bernie Lo and Laurie Dornbrand

GeriPal

In 1988, Cruzan’s parents requested that her feeding tube be removed, arguing that she would not want to continue in this state. On the one hand, this was unfortunate, as it meant Nancy Cruzan could not be disconnected from the feeding tube immediately. ICU care was pretty rudimentary. And that helps us get to the decision.

Document 281
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Former Mercy Health CEO: U.S. Needs to Embrace ‘Death Literacy’

Hospice News

Connelly argues that end-of-life care has become “over-medicalized” and that more patients would choose hospice and palliative care if they had a better understanding both of those services and the alternatives. And the role of the palliative care doctor is to present the glass half empty, meaning it won’t work.

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Aging and the ICU: Podcast with Lauren Ferrante and Julien Cobert

GeriPal

And Lauren Ferrante has found in a study published in JAMA Internal Medicine that trajectories of disability in the year prior to ICU admission were highly predictive of disability post-ICU, on the same order of magnitude as mechanical ventilation. He, his Twitter feed though is brilliant. That will be the last one in his life.

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The Language of Serious Illness: A Podcast with Sunita Puri, Bob Arnold, and Jacqueline Kruser

GeriPal

Alex: We are delighted to welcome Jacky Kruser, who’s a pulmonary critical care doctor and health services researcher at the University of Wisconsin. Alex: And we’re delighted to welcome back Bob Arnold, who is a palliative care doctor, VitalTalk co-founder. Welcome to the GeriPal podcast. Jacky: Thank you.