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Eventually, all the muscles that a person can control are affected, forcing the person to use a ventilator and/or feeding tube. When to Seek Help Caring for someone with ALS often presents many challenges for the patient’s primary caregiver. ALS can also impair the ability to think and cause significant changes to a person’s memory.
And importantly, our socialworker, Aunt Kelly, actually does a search and I would say 75% of the time she finds somebody maybe even higher than that, finds somebody who’s actually a surrogate. Let’s say they’re in the ICU now on a ventilator. To have a socialworker who’s dedicated in many places.
Well, as a kick off to this year’s first in-person State of the Science plenary, held in conjunction with the closing Saturday session of the AAHPM/HPNA Annual Assembly, 3 randomized clinical trials were presented. And that helped them focus on that instead of, say, the blood pressure, the vasopressors or the ventilator settings that day.
It used to also be a socialworker and myself who would actually go to clinic and spend some time up there. Said socialworker has left since then, so it’s now just me. Sarah 24:24 See, I usually always present it as these are things we should think of. Sarah 06:23 It’s just me.
And now ICU care has flourished, and we can keep people alive in the sense that their heart is beating and we can sustain their ventilation and circulation. For example, I had another patient in the ICU who she was on a ventilator. ICU care was pretty rudimentary. It’s certainly not common in my practice.
But I do think POLST, which I conceptualize as an advance care planning tool, really sits in between those worlds of decisions that are relevant for the present versus the few future. I don’t need a checkbox form, I don’t need to know about CPR or mechanical ventilation. That’s not unique to POLST as an order.
As was to be the case throughout the disaster, communication was a real problem, and the only way we had any idea of the magnitude of what was unfolding, was from the paramedics and public that presented. Many of the public who presented with ‘minor’ injuries had just lost everything. All were absorbed into the charcoal faced crowd.
So whether or not somebody wants to be on CPR or ventilator, that sort of thing. ” Or for a socialworker, “Where are we going to discharge them to?” But the priority for these individuals, a lot of focus, and I totally get it, is on those services and the celebration of life afterwards. It was great.
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