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Top Family Caregiver Mistakes:  Part 2; Not hiring in-home help

Hope Hospice

This refers to choosing a very small group of family and friends who have been following infection-control measures with whom we can interact for short periods of time in an outdoor or well-ventilated environment. Home health care is covered by Medicare and most insurances. It is your right to choose the agency you prefer.

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Caring for Someone with ALS

Traditions Health

Eventually, all the muscles that a person can control are affected, forcing the person to use a ventilator and/or feeding tube. ALS is usually characterized by pain, muscle twitching or spasms, stiff muscles, or excessive drooling (caused by weak chin muscles), and later difficulty talking, swallowing, and breathing.

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Caring for the Unrepresented: A Podcast with Joe Dixon, Timothy Farrell, Yael Zweig

GeriPal

And importantly, our social worker, Aunt Kelly, actually does a search and I would say 75% of the time she finds somebody maybe even higher than that, finds somebody who’s actually a surrogate. Let’s say they’re in the ICU now on a ventilator. To have a social worker who’s dedicated in many places.

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PC Trials at State of Science: Tom LeBlanc, Kate Courtright, & Corita Grudzen

GeriPal

And that helped them focus on that instead of, say, the blood pressure, the vasopressors or the ventilator settings that day. And then they had to be receiving 48 hours of continuous mechanical ventilation at a minimum and be an adult. We have our social workers and our psychologists and we know how to manage these symptoms.

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Surrogate Decision Making: Bernie Lo and Laurie Dornbrand

GeriPal

And now ICU care has flourished, and we can keep people alive in the sense that their heart is beating and we can sustain their ventilation and circulation. For example, I had another patient in the ICU who she was on a ventilator. ICU care was pretty rudimentary. It’s certainly not common in my practice.

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Palliative Care in Liver Disease: A Podcast with Kirsten Engel, Sarah Gillespie-Heyman, Brittany Waterman, & Amy Johnson

GeriPal

It used to also be a social worker and myself who would actually go to clinic and spend some time up there. Said social worker has left since then, so it’s now just me. Eric 06:20 Your team look like, is it just you from the palliative care perspective? Sarah 06:23 It’s just me.

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Miscommunication in Medicine: A podcast with Shunichi Nakagawa, Abby Rosenberg and Don Sullivan

GeriPal

Their oxygenation, while important, whether or not we can take them off the ventilator, probably has nothing to do with the big picture, oh, and they’re dying of metastatic pancreatic cancer. And even, like in the ICU, you have this problem, is it getting better or worse? It may not be the big, big problem if you take a big step back.

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